This was just one of the comments of the 100+ participants in the second international conference BeyondRCT: towards Co-operative Citizen Science in Food and Health, that took place on 25-26 September in Amsterdam. The conference was organized by the Dutch patient-led Foundation My Data Our Health and supported by a large number of healthcare organizations, business and patient organizations.
Core themes were:
a) data collection, management and research by citizens in health
b) innovative research methodology to go from n-of-one to collectively applicable knowledge and products
c) organizing an appropriate data-infrastructure that allows for a technical and ethical data flow.
Amidst the keynotes and the interactive break-out sessions, the recently granted (€ 2.6 million) innovative project ‘MyOnwResearch’ was formally kicked off. The MyOwnResearch consortium aims at identifying homogeneous subgroups in fatigue management across chronic immune diseases through single-subject research design.
BeyondCT-2 laid the foundation for a multi-annual working programme on Co-operative Citizen Science, that will be elaborated in the months to come .
Interested parties are invited to contact Gaston Remmers (email@example.com)