Spring Meeting 2019 28 May, Paris

“Timely, comprehensive overview that tackles the big ideas but also delves further into practical applications.”

This was just one of the comments of the 100+ participants in the second international conference BeyondRCT: towards Co-operative Citizen Science in Food and Health, that took place on 25-26 September in Amsterdam. The conference was organized by the Dutch patient-led Foundation My Data Our Health and supported by a large number of healthcare organizations, business and patient organizations.

Core themes were:
a) data collection, management and research by citizens in health
b) innovative research methodology to go from n-of-one to collectively applicable knowledge and products
c) organizing an appropriate data-infrastructure that allows for a technical and ethical data flow.

Amidst the keynotes and the interactive break-out sessions, the recently granted (€ 2.6 million) innovative project ‘MyOnwResearch’ was formally kicked off. The MyOwnResearch consortium aims at identifying homogeneous subgroups in fatigue management across chronic immune diseases through single-subject research design.
BeyondCT-2 laid the foundation for a multi-annual working programme on Co-operative Citizen Science, that will be elaborated in the months to come .

Interested parties are invited to contact Gaston Remmers (g.remmers@mdog.nl)

Summary

Executive Summary of the conference

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